You are here

Hong Kong Alliance for Rare Disease

Enhance understanding of rare diseases among patients, carers and their families; promote self-help and mutual support and positive attitude, towards leading a more fulfilling life.
Promote public education on rare diseases, strengthen community awareness, understanding and support for patients, their families and related self-help organisations.
Ensure rare disease patients and their families’ needs and views are represented via policy advocacy and dialogues with Government authorities; leading to the formulation of proper support policies and services to address their needs in medical care, rehabilitation, education, welfare and social participation.
Support and assist in rare disease-related research study.
Unite rare disease patients, families, self-help organisations, healthcare professionals and academia, media and other stakeholders, promote collaboration and exchange.
Promote dialogues, consultation and collaboration among related rare disease organisations in Hong Kong, Mainland China and overseas.

Power by Trihorse Technology